Chapter 1: The Quest for Recognition

In the UK, the process of obtaining a diagnosis for neurodiversity can feel like a lottery based on your location. Some healthcare professionals are dismissive of adults who seek validation of their differences. Yet, there are also compassionate general practitioners who genuinely listen and prioritize their patients' well-being. My own experiences reflect both extremes.

I want to share my journey with you, hoping it might inspire you to pursue the answers you deserve.

If I had been aware of the terms Autism and ADHD during my youth, my path may have been different. It wasn’t until my late 40s that I began to uncover my masked neurodiversity. There were times I felt alien, often expressing disdain for humanity, only to later realize that some individuals shared a similar wiring to mine; I just hadn’t encountered them yet!

It felt as if we were concealed beneath an "Adult Suit." For a deeper look into this concept, read my poem "Adult Suit."

While society often misunderstands Autistic individuals, I take pride in my uniqueness. I've never felt the need to conform; my neurodiversity is a treasure I hold dear. I empathize with those who find their differences overwhelming and seek assistance or medication. Each of us, despite similar diagnoses, has unique experiences that shape how we engage with the world.

I digress; let me return to my story.

During my time in Buckinghamshire, I faced challenges in being recognized and screened for neurodiversity. A male doctor persistently suggested hormone replacement therapy, attributing my struggles to menopause. This was baffling; how could menopause explain a lifetime of difficulties? I had endured chaotic relationships and was captivated by collecting feathers, stones, and crystals, alongside researching subjects like the history of Fray Bentos Pies.

The doctor’s dismissive attitude was evident, as he seemed to judge me through the lens of his own ideals, surrounded by images of his perfect family and idyllic life.

In an attempt to bolster my case, I brought a close friend to an appointment for support. I hoped that their presence would elicit a different response from the doctor. Unfortunately, he remained uninterested and insincere, leaving both of us perplexed.

In 2018, I became a widow, and by 2021, while decluttering my home, I looked forward to a fresh start in a new county where I was unknown. Excitement mingled with apprehension about this significant change.

Just as I settled into my new home in North Shropshire, I registered with a highly recommended local doctor. On December 8, 2021, I had my first phone call with this GP, and it felt like I had won an emotional lottery. For the first time, I felt truly heard during our 45-minute conversation. To my astonishment, I was placed on the list for a pre-screening!

Though I learned there was a two-year wait, it felt swift compared to the lifetime I had already waited.

In December 2023, I contacted my practitioner and was provided with a number for the Autism Hub, A4U, in Shrewsbury. After leaving a voicemail on December 5, they promptly reached out to me. To my delight, I received an email confirming my place on the waiting list, despite the high demand for referrals.

I quickly replied to their email, feeling a sense of relief as I completed their questions. I recommend that you do not confine yourself to rigid options; instead, express your feelings freely.

They inquired if I would accept an appointment if one became available soon. Though I typically shy away from last-minute arrangements, this was a unique opportunity, so I agreed. A few days later, I was informed of an opening for December 12, 2023, at 10 AM.

The two-hour Zoom consultation felt like a significant breakthrough, and I was overwhelmed with relief. The assessor, Lucy, was incredibly compassionate and clearly understood my experiences. I scored 9 out of 10 on the assessment, paving the way for the formal screening.

On January 23, 2024, I received an email from the Adult Autism Team in Chester regarding my official screening, which would happen soon. This included a pre-assessment questionnaire and consent form.

I participated in another extensive two-hour assessment with Lucy, preparing for my meeting with the professional evaluators. I am elated with the progress and hopeful that my Autism will be officially recognized by Spring 2024.

However, I realized I hadn’t specified my desire for an ADHD assessment, resulting in another two-year wait. It’s crucial to be clear about your needs when seeking a diagnosis since the processes are handled separately.

Despite the delays, I remain calm and focused. My primary motivation for seeking this diagnosis has always been recognition, self-awareness, and the desire to share my journey to assist others. This is exactly what I am doing now, typing away in my favorite café.

My next goal is to get published on Medium to reach a broader audience. I am grateful to my current doctor and Lucy at A4U for their understanding. I also appreciate Ohitsjustsue for allowing me to contribute to the Neurodivergent publication.

I wrote this article to explore how different regions in the UK and around the world are supporting—or sometimes obstructing—adults with neurodiversity. I welcome your thoughts on your waiting times and experiences in seeking diagnoses, particularly within the UK and the NHS. I’m also curious about the healthcare services available for Autism and ADHD in other countries.

Wishing you all the best on your journey toward recognition and understanding. May you find the support you need as you navigate your own discovery process.

©️Willow Innershire Sterrick 2024

Thank you for taking the time to read my story. I appreciate your support.